LInks: medical (EDS, ME/CFS, Covid)

Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study by Tomasz Tabernacki, Lydia McLachlan, Matthew Loria, Shubham Gupta, Swagata Banik, Kirtishri Mishra, and Megan McNamara.

TGD individuals demonstrated a significantly higher prevalence of hEDS and HSD than cisgender individuals (OR: 18.45). The prevalence among TGD individuals assigned female at birth was 2.62%, and among those assigned male at birth, 1.00%, compared with 0.16% and 0.04% in cisgender females and males, respectively. Hormone therapy status was not associated with significant differences in prevalence.

Exciting New Research Sheds Light on hEDS Biology, study by Griggs M, Gensemer C, et al..

The researchers found 35 blood proteins that were different in people with hEDS compared to those without. Most of these changes were in proteins linked to the immune system, blood clotting, blood pressure, and inflammation. The largest group of changes involved the complement system, which helps the body fight infection and control inflammation.

Factsheet: The immune system and ME/CFS by ME Research UK.

ME/CFS is no longer viewed as a complete “mystery.” A simple PubMed search reveals hundreds of biomedical studies showing measurable differences between people with ME/CFS and healthy controls.

The symptoms are coming from inside the house. (& Long Covid Prevention Tips!) by Nyx Mir. Lots of good info!

COVID is most often transmitted via the air, not droplets like we thought early in the pandemic. As such: Fresh air will be your easiest and most effective option, assuming climate safety. Even a slightly open window will be MUCH better than closed windows.

Indefinitely Ill – Post-Covid Fatigue by Maria.

If you have had Covid-19 (tested or not), and are getting to a month or two on and still feel like you’ve been hit by a bus, please, for the love of God, rest.

CONVALESCE.

Huntington's disease successfully treated for first time by James Gallagher.

The new treatment is a type of gene therapy given during 12 to 18 hours of delicate brain surgery. [...] "We never in our wildest dreams would have expected a 75% slowing of clinical progression," she said.

Mortality caused by tropical cyclones in the United States by Rachel Young & Solomon Hsiang.

We estimate that the average Tropical Cyclone generates 7,000–11,000 excess deaths, exceeding the average of 24 immediate deaths reported in government statistics6,7. Tracking the effects of 501 historical storms, we compute that the TC climate of CONUS imposes an undocumented mortality burden that explains a substantial fraction of the higher mortality rates along the Atlantic coast and is equal to roughly 3.2–5.1% of all deaths.

Osprey's Koseret Green

I bought a maroon Osprey Sojourn rolling backpack about 15 years ago. Recently it came back from checked luggage with some frayed areas, so I looked up repairs. Turns out Osprey will repair or replace their products no matter how long it's been. I paid $25 to send it in, they decided it wasn't repairable, and sent me a new one in Koseret green. I don't love the new color, but it's better than trying to spot a black item in a sea of black items.

When I asked the customer support person about the color name, I got back what I'm pretty sure was AI slop, so I guess they just picked it because it sounds interesting. Koseret, Lippia abyssinica.

Grateful to have a new pack! In addition to being a different color, they've made slight improvements, but it's essentially the same.